We lost dear little baby Edward (who we like to refer to as LBE) on 19 April 2009, aged 6 months and 5 days. He was my 3rd nephew, and the first son to my sister and her husband. My eldest sister contacted The Lullaby Trust (then known as FSID) to try and help us through those initial horrendous days/weeks and months as we didn’t really know where to turn.
At the time when we lost Edward, it was reassuring to know that we weren’t the only people going this awful tragedy, and there were support networks out there to help, and listen, when you needed it. They simply reassured us that this emotional rollercoaster we were experiencing would eventually slow down. Throughout the years, we have been able to see the wonderful things the Trust does for so many people, and wanted to give something back.
At the time when we lost Edward, it was reassuring to know that we weren’t the only people going through this awful tragedy, and there were support networks out there
While it feels funny to write, luckily not many people know of the Trust as unless you experience this tragedy, it is not something people like to talk about. It’s important for me to be able to give back and support others, as this is what helped our family. In addition it’s important to raise awareness for all that The Lullaby Trust, and all that can be done to try and prevent the awful thing that is cot death (SIDS). I also wanted to become a Befriender, as it’s a way of keeping LBE in our lives as much as we can, and ensuring his short life is able to help others along the way.