Supporting CONI families during the Coronavirus (COVID-19) outbreak

During the Coronavirus (COVID-19) outbreak we appreciate that supporting families on the CONI programme in the usual way will prove difficult. We advise that health professionals should follow their current local guidance with regard to providing face-to-face contact with families on the CONI programme.

Telephone contact may be a suitable alternative to providing face-to-face contact for listening visits and reviewing symptom diaries. Although not ideal, new enrolments may also be carried out by phone and the Enrolment Form completed online and submitted to the CONI Team. For CONI babies whose weight is being monitored weekly/regularly and there is concern about faltering growth, then follow local guidelines for these babies.

Please regularly check the CONI webpages for information as national guidance is continually evolving. The CONI Team can be contacted via and The Lullaby Trust Information Helpline (0808 802 6869) is available for general safer sleep advice.

CONI Presentations

To support the contact that co-ordinators and health visitors have with CONI families, we have produced a range of bitesize presentations for you to share with families.

A registration page opens once the link is clicked which then loads the presentation. LogMeIn is fully compliant with EU law regarding data security and privacy.

What is the CONI Programme?

Find out more about how the CONI programme can support bereaved families when they have another baby:

Symptom Diary

Find out more about the Symptom Diary and how to use it on the CONI programme:

Movement Monitors

Find out more about Movement Monitors and how to use them on the CONI programme:

Useful resources for guidance

Unicef UK Baby Friendly Initiative

Royal College of Obstetricians and Gynaecologists (RCOG)

RCOG Information for pregnant women and their families

World Health Organization (WHO)

Public Health England (PHE)

More Information for CONI Coordinators

  • We have updated our CONI Leaflet, you can download the new version here.
  • In view of the current and evolving COVID-19 situation, please keep an eye on our meetings page for future dates for Regional Meetings and new CONI coordinator training.
  • It is important for us to record as accurately as possible the number of families who decline CONI, or who use CONI but do not wish their details to be sent to the CONI Team. Please use this form to notify us of any families known to you who are eligible to participate on CONI and decide against using the programme or who enrol on CONI but decline consent for details to be sent to the CONI Team. Please return the form via email or post.

Contact us

CONI is currently available in many areas in England, Wales, Northern Ireland. For further details contact the CONI team on