Parents who have experienced a sudden and unexpected death of a baby often feel anxious when they have another baby. Working with local public healthcare providers we facilitate a service for bereaved parents.
CONI is available through health visitors, midwives, paediatricians and GPs, but unfortunately CONI is not available everywhere.
Through CONI, parents may:
- Receive regular contact ( home visits & telephone conversations) from their health visitor, so they can talk freely about any worries and seek advice
- Borrow movement monitors which pick up movements as the baby breathes, and will ring an alarm if movements stop for longer than 20 seconds
- Receive training on basic life support so parents will know what to do if their baby stops breathing before professional help is available.
- Use a symptom diary to record their baby’s health, which they can then discuss with their health visitor or show to a medical professional, when they are worried.
- Use the Baby Check App to help to decide when their baby is unwell and needs to seek medical help.
- Monitor their baby’s growth with a detailed weight chart to detect changes that may mean baby should be checked by a doctor
- Receive a room thermometer and guidance on baby bedding and clothing
- Receive a ‘passport’ so that if the parents’ are worried that their baby is unwell, they can be seen quickly by the right person either at the GP or Hospital
“Following the death of Joe, when I fell pregnant with Alfie I was obviously delighted, but extremely anxious. The CONI programme was a tremendous support. I couldn’t have coped without it.” – Tracey, South London
Free CONI Presentations
If you would like to find out more about CONI, please click here to watch the presentations.
Availability of CONI in your area
CONI is currently available in many areas of England, Wales, Northern Ireland. Each area has a local co-ordinator who will discuss with parents the support available and arrange a plan of care with parents and professionals. Where CONI is available, this programme is for parents who are expecting / given birth to a baby following the sudden unexpected death of their baby. Some areas are able to offer the programme to parents who are bereaved for other reasons, you will need to ask your midwife.
The programme is usually offered for 6 months after the baby is born but may be longer depending on the individual circumstances.
For further details about CONI and the availability of CONI in your area, please contact The Lullaby Trust on 0808 802 6868 or email firstname.lastname@example.org.
It is really helpful to us to get the views of parents who have used our Care of Next Infant (CONI) programme. If you’d like to give us your opinion of the programme, please fill in the form here.