Parents who have suffered a sudden and unexpected death of a baby often feel anxious when they have another baby. Working with the NHS we run a national health-visitor led service for bereaved parents, Care of Next Infant (CONI) programme, which supports families before and after the birth of their new baby. CONI is available through many hospitals and community health centres and involves health visitors, midwives, paediatricians and GPs.

Through CONI, parents can:

  • receive regular home visits by their health visitor, so they can talk freely about any worries and seek advice
  • keep a symptom diary to record their baby’s health, which they can then discuss with their health visitor
  • use the Baby Check booklet to help decide when their baby should be examined by a doctor
  • monitor their baby’s growth with a weight chart and weighing scales, to detect changes quickly
  • borrow apnoea (breathing) monitors which pick up movements as the baby breathes, and will ring an alarm if movements stop for longer than 20 seconds
  • receive training on resuscitation
  • receive a room thermometer and guidance on bedding and clothing

Tracey, from south London, enrolled her baby on the CONI programme, and said:

“Following the death of Joe, when I fell pregnant with Alfie I was obviously delighted, but extremely anxious. The CONI scheme was a tremendous support. I couldn’t have coped without it.”

CONI PLUS offers similar help to other families who may have special reason to be anxious about their baby. They may, for example:

  • be close relatives of a baby that has suffered a sudden infant death
  • have lost a baby to causes other than sudden infant death
  • have a baby who has experienced an apparent life threatening event

CONI is currently available in many centres in England, Wales, Northern Ireland. For further details contact The Lullaby Trust 0808 802 6869 or email