Receive regular contact
e.g. home visits and telephone conversations from their health visitor, so they can talk freely about any worries and seek advice.
Through CONI, parents may:
Borrow movement monitors
which pick up movements as the baby breathes and rings an alarm if movements stop for longer than 20 seconds.
Receive training on basic life support
so parents will know what to do if their baby stops breathing before professional help is available.
Use a symptom diary
to record their baby’s health, which they can then discuss with their health visitor or show to a medical professional, when they are worried.
Use the Baby Check app
to help to decide when their baby is unwell and needs to seek medical help.
Monitor their baby’s growth
with a detailed weight chart to detect changes that may mean baby should be checked by a doctor.
Receive a room thermometer
and guidance on safer sleep for babies, baby bedding and clothing.
Receive a ‘passport’
so that if the parents’ are worried that their baby is unwell, they can be seen quickly by the right person either at the GP or hospital.
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What parents say about CONI
Following the death of Tim, when I fell pregnant with Jacob I was obviously delighted, but extremely anxious. The CONI programme was a tremendous support. I couldn’t have coped without it.
আমাদের CONI প্রোগ্রামে অংশগ্রহণকারী অভিভাবক -
What professionals say about our CONI training:
I found this course very informative. I liked that I was able to go through the different modules at my own pace, when I had the time, in between working on my case load.
CONI coordinator -
CONI সম্পর্কে অভিভাবকরা যা বলেন:
My focus experience has been very good and helps my health having me better head space to deal with my children.
আমাদের CONI প্রোগ্রামে অংশগ্রহণকারী অভিভাবক -
What professionals say about our training:
Really enjoy the training and have lots of questions around my area and what we offer our families.
CONI coordinator -
CONI সম্পর্কে অভিভাবকরা যা বলেন:
It’s a fantastic thing to have after a traumatic event, having that constant healthcare provider always checking in and knowing you're not alone has been amazing.
আমাদের CONI প্রোগ্রামে অংশগ্রহণকারী অভিভাবক
Availability of CONI in your area
CONI is currently available in many areas of England, Wales, Northern Ireland. Each area has a local co-ordinator who will discuss with parents the support available and arrange a plan of care with parents and professionals. Where CONI is available, this programme is for parents who are expecting / given birth to a baby following the sudden unexpected death of their baby. Some areas are able to offer the programme to parents who are bereaved for other reasons, you will need to ask your midwife.
The programme is usually offered for 6 months after the baby is born but may be longer depending on the individual circumstances.
For further details about CONI and the availability of CONI in your area, please email [email protected].
If you're passionate about making CONI available in your area
We are too. Contact us today. We will do all we can to ensure CONI is available to every parent and every family. You can keep grieving families supported by influencing key decision makers in your area.
We are delighted to have received funding for CONI in Northern Ireland from the National Lottery. This will fund life-changing services for families in Northern Ireland from 5 September 2025 to 5 September 2026.
ভিডিও রিসোর্স
We've have created a series of bitesize presentations to support the contact that coordinators and health visitors have with CONI families.
